Romeo’s Broken Heart

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  • Home
  • About
  • Romeo’s Story
  • The Journey Begins
  • 20 Week Scan
  • The Diagnosis
  • Amniocentesis
  • The Results
  • Further Scans
  • Induction
  • Labour
  • Our First Month
  • Hearing Screening
  • Feeding
  • Coming up to 3 months
  • The hospital bubble
  • Surgery
  • Recovery
  • CMPA
  • Stoma
  • Behind the scenes
  • A New Year
  • The Day We Nearly Lost You
  • Pacemaker
  • ONE In A Million
  • Stroke
  • Sepsis
  • PICU
  • Palliative Care
  • The Last Day
  • Contact

It’s all about Romeo

Romeo was born with a rare form of CHD called Tetralogy of Fallot, affecting 1 in 3000 babies. At 4 months old he had open heart surgery to correct this however since then he has not thrived. At 10 months old and after suffering four cardiac arrests; Romeo was diagnosed with an even rarer heart condition which affects less than 1 in a million babies called Restrictive Cardiomyopathy.

The only cure for this is a heart transplant, unfortunately Romeo was not deemed suitable for this and after months in intensive care came home under palliative care for 5 months.

He put up the biggest and bravest fight throughout his life but sadly grew his angel wings early hours on the 12th of October 2021.

This page documents his journey throughout his life.

In loving memory of Romeo Jazz Francis 05/04/19 – 12/10/21 ♥️

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Happy 1st Birthday to our beautiful Lucia 💝 A year ago today my waters broke unexpectedly, we had a whole team who had planned Lucia’s arrival but she had other ideas. I was due to go in at the end of August to be induced early to have her so that I didn’t go into spontaneous labour and so that we could get a rota of nurses to look after Romeo at home round the clock for 5 days but as we all know you cannot plan anything when it comes to babies. Happy 3 Year Heartiversary Romeo ♥️ I dreamt about Romeo last night 💭 Proof that my little guardian angel is always looking out for me 👼🏻 This moment in time will forever trigger me and make me feel so mad 😔 Today was my first official day back at work after over 3 years. I’ve been so lucky with my work they have been incredible this whole time allowing me to take sabbatical leave after my maternity leave and then letting me go on maternity leave again with Lucia once my sabbatical was up. They’ve been so understanding and I’m gradually building up my days and won’t be back fully until October. Our lovely little LuLu 💛 It’s my birthday and I’ll cry if I want to 🥹

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Talk about it.

By sharing Romeo’s story I hope to raise awareness around the importance of organ donation.

By becoming an organ donor you could save up to 9 lives, how amazing is that?

All you need to do is…talk about it. Share your wishes with your family around organ donation, it really is as simple as that. Your family will always be consulted when it comes to organ donation. By doing so you could help save a life like Romeo.

For more information about organ donation please click on the below picture to redirect you to the NHS Organ Donation website:

“Organ donation is not a tragedy but it can be a beautiful light in the midst of one.”

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Contact
romeosbrokenheart@outlook.com
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If you would like to help share Romeo’s story or are interested in fundraising

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Romeo’s Broken Heart

Romeo’s Broken Heart
  • Home
  • About
  • Romeo’s Story
  • The Journey Begins
  • 20 Week Scan
  • The Diagnosis
  • Amniocentesis
  • The Results
  • Further Scans
  • Induction
  • Labour
  • Our First Month
  • Hearing Screening
  • Feeding
  • Coming up to 3 months
  • The hospital bubble
  • Surgery
  • Recovery
  • CMPA
  • Stoma
  • Behind the scenes
  • A New Year
  • The Day We Nearly Lost You
  • Pacemaker
  • ONE In A Million
  • Stroke
  • Sepsis
  • PICU
  • Palliative Care
  • The Last Day
  • Contact
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