Romeo’s Broken Heart

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  • Home
  • About
  • Romeo’s Story
  • The Journey Begins
  • 20 Week Scan
  • The Diagnosis
  • Amniocentesis
  • The Results
  • Further Scans
  • Induction
  • Labour
  • Our First Month
  • Hearing Screening
  • Feeding
  • Coming up to 3 months
  • The hospital bubble
  • Surgery
  • Recovery
  • CMPA
  • Stoma
  • Behind the scenes
  • A New Year
  • The Day We Nearly Lost You
  • Pacemaker
  • ONE In A Million
  • Stroke
  • Sepsis
  • PICU
  • Palliative Care
  • The Last Day
  • Contact

It’s all about Romeo

Romeo was born with a rare form of CHD called Tetralogy of Fallot, affecting 1 in 3000 babies. At 4 months old he had open heart surgery to correct this however since then he has not thrived. At 10 months old and after suffering four cardiac arrests; Romeo was diagnosed with an even rarer heart condition which affects less than 1 in a million babies called Restrictive Cardiomyopathy.

The only cure for this is a heart transplant, unfortunately Romeo was not deemed suitable for this and after months in intensive care came home under palliative care for 5 months.

He put up the biggest and bravest fight throughout his life but sadly grew his angel wings early hours on the 12th of October 2021.

This page documents his journey throughout his life.

In loving memory of Romeo Jazz Francis 05/04/19 – 12/10/21 ♥️

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Happy Fathers Day to the best Daddy in the world 🌎 8 months of being one of heavens angels👼🏻💔 We all miss you Romeo ♥️👼🏻 The most beautiful rainbow I’ve ever seen in my life 🌈 Not a second of the day goes by when you’re not on my mind. Missing you my little skinny legs 🤍 A year ago today we left hospital, the place that we had called home for 4 months. A place where we had spent so much time with our little boy throughout his life. The place where we got married, where Romeo was christened, where he was born, where we received the worst news any parents could imagine and the place that’s probably heard more prayers than a church. A place that holds some of our fondest memories and some of our worst. 7 months of missing you 🥺💔 7th May 2021 - The BEST day ever! 🐷 Thank you so much to @paultonspark for giving us the best family memories and Southampton PICU for arranging this day for us. Romeo had the best time here after over 100 days in intensive care, they arranged a special meet and greet for us with Peppa & George and gave us priority ride passes so we got to experience everything there. A day that our whole family will forever look back on to remember and cherish 💗 I think Romeo’s favourite ride was in the ambulance on the way there 🤣 Took both my babies to see the Bluebells today 💙

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Talk about it.

By sharing Romeo’s story I hope to raise awareness around the importance of organ donation.

By becoming an organ donor you could save up to 9 lives, how amazing is that?

All you need to do is…talk about it. Share your wishes with your family around organ donation, it really is as simple as that. Your family will always be consulted when it comes to organ donation. By doing so you could help save a life like Romeo.

For more information about organ donation please click on the below picture to redirect you to the NHS Organ Donation website:

“Organ donation is not a tragedy but it can be a beautiful light in the midst of one.”

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Contact
romeosbrokenheart@outlook.com
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If you would like to help share Romeo’s story or are interested in fundraising

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Romeo’s Broken Heart

Romeo’s Broken Heart
  • Home
  • About
  • Romeo’s Story
  • The Journey Begins
  • 20 Week Scan
  • The Diagnosis
  • Amniocentesis
  • The Results
  • Further Scans
  • Induction
  • Labour
  • Our First Month
  • Hearing Screening
  • Feeding
  • Coming up to 3 months
  • The hospital bubble
  • Surgery
  • Recovery
  • CMPA
  • Stoma
  • Behind the scenes
  • A New Year
  • The Day We Nearly Lost You
  • Pacemaker
  • ONE In A Million
  • Stroke
  • Sepsis
  • PICU
  • Palliative Care
  • The Last Day
  • Contact
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